Baby Girl

I just want to thank everyone for the prayers and support for millie and our family. We are so grateful.
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it's been a rollercoaster of a ride emotionally but I think we are in the home stretch. I'm still not sure when we will be going home but hopefully soon.
Trial run of no oxygen! So far so good
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Millie update 14 minutes ago: Millie is going home :D
 
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Wonderful news, she is an angel on earth. God bless her.
 
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Millie update: after our genetics appointment yesterday and being referred to a pulmonologist we are going back to children's today so they can monitor her in the icu and figure out how to best supplement millies oxygen while sleeping. We will be there for atleast one night but we know how hospital trips can become an extended stay real quick. We hope that we get this figured out for her quickly now that she has her diagnosis.
 
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Ragnar0711 said:
Millie update: after our genetics appointment yesterday and being referred to a pulmonologist we are going back to children's today so they can monitor her in the icu and figure out how to best supplement millies oxygen while sleeping. We will be there for atleast one night but we know how hospital trips can become an extended stay real quick. We hope that we get this figured out for her quickly now that she has her diagnosis.
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We have her in our prayers, Ragz.
 
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